Date: 2001-08-29 09:04:00 UTC
The ADV went active and seemed to cause a rapid deterioration of all her
other complications... especially the liver, which finally stopped
functioning at all last night.
A little before midnight, Jojo started a fast and hard crash. I had some
medications to help keep her pain-free and comfortable... it's all I could
I stayed up all night, hand feeding little doses of Dyne and Ferretvite
watered down and just holding her and talking to her.
She passed quietly in my arms a few minutes ago.
For anyone who never knew her intake story and pictures.
And when she responded before she got sick....
I hope she finally knows peace and the bastards who had her somehow pay.
Thank you to the many kind people who took her to heart over the past year,
cheered and cried for her and loved her with me. Especially Sonya, her
Thank you Christopher, for your kind words yesterday.... it meant more than
you could imagine.
In her honor and memory, please support ADV research and test your babies. I
know I never want to witness this again.